Thanks for sharing, and for doing this work. Hope the conference went well! I filled out the survey. I'm not sure if I understood what they were asking, to be honest. I put some thoughts in on the questions, but I found it a bit confusing. I'm a bit hesitant on any kind of research on autistic people (with so much controversy on the topic), but this seems to be aimed at helping people rather than "curing" them, so that seems good.
Thanks for giving it a go! I recall finding it confusing too. Others have as well. It's because they are asking for questions, rather than replies. V strange. But everything that comes through the survey has to be considered so it's worth a shot to get through. I know what you mean about research and autism. I'm wary, too. Even this survey, which has good intentions, seems likely to be dominated by non autistic people so that's pretty problematic. It seems better to be involved than not at all. As a steering group member, I can raise this, at least. Thanks again, and I look forward to your next newsletter 😊
Thanks for sharing, and for doing this work. Hope the conference went well! I filled out the survey. I'm not sure if I understood what they were asking, to be honest. I put some thoughts in on the questions, but I found it a bit confusing. I'm a bit hesitant on any kind of research on autistic people (with so much controversy on the topic), but this seems to be aimed at helping people rather than "curing" them, so that seems good.
Thanks for giving it a go! I recall finding it confusing too. Others have as well. It's because they are asking for questions, rather than replies. V strange. But everything that comes through the survey has to be considered so it's worth a shot to get through. I know what you mean about research and autism. I'm wary, too. Even this survey, which has good intentions, seems likely to be dominated by non autistic people so that's pretty problematic. It seems better to be involved than not at all. As a steering group member, I can raise this, at least. Thanks again, and I look forward to your next newsletter 😊
It is confusing isn't it? Apparently everyone is finding that. I'll pass that back to them. They are asking for Q's I think rather than answers.